tag:blogger.com,1999:blog-3815816737713723168.post2719784309680763145..comments2024-01-05T14:47:17.005-05:00Comments on Exploring Holland: BlueShannonhttp://www.blogger.com/profile/03314523389648527978noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-3815816737713723168.post-87106985573503746142012-07-01T20:32:03.684-04:002012-07-01T20:32:03.684-04:00I'm so sorry you and all the other MPS familie...I'm so sorry you and all the other MPS families have to deal with this, Shannon. I don't think your thoughts are morbid. They're realistic. Terrible as it is, it's going to happen. And when that happens you will continue to be there for your friends and they will be there for you. You have shared journeys thus far and can continue to journey together, no matter what happens. Your family (and friends) is in my prayers. Hugs to you all.PKnoreply@blogger.comtag:blogger.com,1999:blog-3815816737713723168.post-85594138015199606422012-06-15T22:57:52.515-04:002012-06-15T22:57:52.515-04:00Found you after seeing the your children's swe...Found you after seeing the your children's sweet pictures shown by their grandfather on Undercover Boss. We have different stories but similiar paths. It always makes me feel better to know that someone else is also trudging this unthinkable path-two kids with a fatal genetic disorder.Phyllishttps://www.blogger.com/profile/17211779263506355379noreply@blogger.comtag:blogger.com,1999:blog-3815816737713723168.post-10584953342096247802012-06-13T19:43:52.211-04:002012-06-13T19:43:52.211-04:00This really hits home, Shannon. Thank you being s...This really hits home, Shannon. Thank you being so candid by writing about something that can be so difficult to think about. I too have been feeling the layers of loss regarding the big picture in our Sanfilippo Worlds. It is just beyond devestating. <br /><br />This was such a beautiful post, I just wanted to thank you again for writing about this. JoanneJoanne Huffnoreply@blogger.comtag:blogger.com,1999:blog-3815816737713723168.post-46544610463859616382012-06-12T21:32:06.783-04:002012-06-12T21:32:06.783-04:00This is the first time I've ever commented, bu...This is the first time I've ever commented, but this post was so right on. My son went through 3 1/2 years of chemo for leukemia (he's doing well now) and we met so many families through the journey. Sadly, so many have not survived their battle and we have grieved with them far too many times. It's hard on so many different levels. You hit the nail on the head -- most people would never think of something like this in the middle of their day. I do.Nataliehttps://www.blogger.com/profile/10504057828175813981noreply@blogger.com