tag:blogger.com,1999:blog-3815816737713723168.post2868926669349544591..comments2024-01-05T14:47:17.005-05:00Comments on Exploring Holland: New Fashion AccessoryShannonhttp://www.blogger.com/profile/03314523389648527978noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-3815816737713723168.post-390324146864514202013-02-17T16:38:08.161-05:002013-02-17T16:38:08.161-05:00I know you feel so alone much of the time, but I w...I know you feel so alone much of the time, but I want you to know that I read your blog every week. Although we don't know each other personally, when you lament, I lament with you, and when you rejoice, I rejoice as well.Messy and Wonderfulhttps://www.blogger.com/profile/17784037855201508825noreply@blogger.comtag:blogger.com,1999:blog-3815816737713723168.post-61665727671082637652013-02-16T04:23:10.388-05:002013-02-16T04:23:10.388-05:00i found your blog by chance 2 or so years ago, bee...i found your blog by chance 2 or so years ago, been a regular reader since. i have never commanded, but please know you are in my thoughts and prayers. with love from germany, isabelAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3815816737713723168.post-53301231308958049642013-02-13T21:41:31.433-05:002013-02-13T21:41:31.433-05:00Her new orthotics look like little knee high boot....Her new orthotics look like little knee high boot. Very stylish I must say! I hate that she is having so much pain when she wakes up :(!Juliahttps://www.blogger.com/profile/09975636014908027006noreply@blogger.comtag:blogger.com,1999:blog-3815816737713723168.post-8579817058277391842013-02-13T15:22:34.626-05:002013-02-13T15:22:34.626-05:00You're absolutelly RIGHT! Surgery just in last...You're absolutelly RIGHT! Surgery just in last last laaaast case. I have severe knee problems and never did any surgery. Many doctors tried to say how fabulous the surgeries are, but the majority of them is soooo against it, cause after that, it's over, and the knees will never be the same again. So I'm just happy with my crutches, and surgeries would not help me anyway (since I have a degenerative disease, and that's why my knees are deformed firstly). I hope Wavy gets better, really, I read the entire blog and now I know how difficult MPS can be, but your kids are more than sanfilippo, they're such amazing children and I continue giving my steps with their support, really! They are my inspirations. My disease just affect my legs, so I'm fine, but sometimes when I get tired and sad, wanting to give up, I think about Waverly and Oliver and I feel stronger. I love them with all my heart! God bless all your family. :)Mari Yukinahttps://www.blogger.com/profile/04130075376391744012noreply@blogger.com