I have spent the past few days organizing photos. Since our return to the US, I have taken thousands of pictures. However, they are just sitting on our computer. So I uploaded them to snapfish (it took forever!) and I have been working on creating photo books. I am typically a purger - I love giving things away that we no longer use and I despise clutter. But when it comes to photos of Waverly & Oliver, I just can't hit that delete button. I want to remember each and every moment - eyes closed, head down and all. I have finished 2 books thus far - our Disney World trip from last December and our Cape May weekend from the summer. I jammed it full of my favorites and the leftovers are sitting in a photo file. I am still not sure what I will do with all of them. Now I just want the books delivered, so I can see them!
Looking back is so much fun. There is a story behind each photo and creating the photo books allowed me to put text on each page...a reminder for when I am old. Looking back is also a stark reminder of just how much Wavey has changed. I remember being in the moment a year ago and thinking that I have lost so much of my little girl. Yet now I look back, compare to today and realize that I should have savored the moment more. This disease is so cruel. Only other parents whose children suffer from disease such as Sanfilippo can understand this conflict - taking joy in today while anticipating the pain of tomorrow. It is a terrible.
I am saving the memories. Capturing them, so I can find comfort in them years from now.