I have had a difficult few days. I am feeling down and in desperate need for change. The isolation of Sanfilippo has been pronounced lately. I feel so entrenched in this "special needs world", that I am losing my ability to function in normal society. I am finding myself feeling quite awkward at times.
I often talk with my fellow MPS moms about parenting. Many of the moms also have "typical/unaffected" children. They have one foot in the real world and one in the special needs world. It seems so difficult to me, because it is so unknown. I do not know how to parent a normally developing child. It is actually intimidating. I don't know how they function trying to balance both worlds.
Recently though, I have been feeling so alone. It isn't easy for people to come into my world. It is intimidating for them. It can be scary. Their kids don't understand and they don't know how to explain it, so they avoid. I understand.
I simply wish things were different.