Meet the McNeil Family

Meet the McNeil Family

Sunday, October 28, 2012

10k For Jill's House

Matt is running the Marine Corps Marathon 10k to raise money for Jill's House. Please consider supporting his run by making a donation to Jill's House. If you read my blog, you know how much our family has benefited from this incredible local organization that supports families who have children with special needs. You can donate HERE.


Oliver's Tears

Sweet little Oliver has had a very rough week. It all started on Monday. He was He woke up crying, which is very atypical. The entire day he was whiny/crying, couldn't settle and was quite manic. Nothing seems to capture his attention and he was unable to focus at all. He cried when he put him to bed and Tuesday started much the same way. He has OT & PT in the mornings and his therapist were startled to see him behaving in this way, because it is simply so unlike him. I hardly sent him to school last week, because he was so upset. I took him to our pediatrician and she couldn't find anything wrong.

He has been happiest strapped into his car seat or wheelchair. We took a lot of walks with Watson while Wavey was at school. Oliver really enjoying watching Watson walk next to him. And Watson did a great job staying right next to the chair.

I remember this behavior in Waverly a few years ago. It usually signified a regression. I saw the crying and mania as confusion. Their little brains are becoming more and more effected by the GAG build up. I can't imagine how scary it must be to not be able to form a word or all of a sudden have difficulty walking.

We are tying to so things that keep him as happy as possible - lots of car rides and walks.

See Saw

Waverly & Oliver's ID class took a field trip to Clemjontri - our favorite accessibly playground. Oliver spent most of the morning climbing up the stairs, crossing bridges and sliding. Waverly did a lot of walking, thanks to the amazing Chao-An (her aide). She also settled into the see saw for awhile and seemed to really enjoy bouncing. I couldn't capture a smile, but it was there.

I am continually grateful for a wonderful school environment for the kids and staff that truly love my kids. This has been such a great school year thus far.

Oliver's First Kindergarten Field Trip

Oliver's kindergarten class visit a local pumpkin patch outdoor playground extravaganza. He wore his very stylish white tee decorated with pumpkin stamps. He loves playing on the toy train, the slides, climbing on the hay bales, hay ride and selecting a mini pumpkin. Although the bus ride there and back may also have been the highlight. His ID teacher accompanied him and sent me photos throughout the trip. He had such a wonderful time.

Oliver & His Scooter

Last weekend we spent some time cleaning out the garage, so we can fit the car inside as inclement weather approaches. Oliver spotted his scooter and was very excited to take it for a spin. He did a great job helping to propel himself forward. However his favorite way to ride is both feet on, with mommy pushing him. We had a great time riding down the driveway and on the sidewalks in front of the house.

Monday, October 15, 2012

My Boys

I love this picture of Matt, Oliver & Watson - my boys!!

Apple Picking

We visited our favorite orchard a few weeks ago on a beautiful autumn day. We picked tons of apples and made sauce & pies. Oliver loved riding around in the wagon.

Waverly, Oliver & Watson Update

I can't believe how long it has been since I have updated the blog. Our new puppy most definitely has taken up a lot of my time, but I think we are settling into a new routine and hopefully I will be able to blog a bit more regularly now.

Watson is doing well. He has been with us for about 5 weeks now. He is almost completely potty trained and has been sleeping through the night for a few weeks. This past weekend was a bit rough for him. He picked up some rare parasite and got incredibly sick. He is still recovering, but seems to be doing better after a few days of antibiotics. He loves to play fetch and go on walks. And he is learning basic commands, thanks to a puppy kindergarten glass we attend together. He gets very excited around the kids, but hopefully with additional training we can work on his behavior with them. Waverly adores him and Oliver is slowly getting used to him.

Oliver is doing quite well. I am incredibly proud of how easily he adjusted to school this year. It is a new classroom and teacher, in addition to a full day. I was worried it may be too much for him, however he seems to be having a wonderful time. Over the summer we noticed a marked shift in his behavior - more easy going nature and easily separating from us a summer school drop off. Thankfully, the behavior changes have remained. He is happy and smily at school. He seems to love PE, recess and music the best (and of course snack time & lunch).

In other Oliver news, we recently started the paperwork to register him for stays at Jill's House. Once he turns 6 in December, he will be able to take advantage of all they have to offer. He is going to be over the moon excited to break through those doors to the playground and indoor pool. I am just not sure what Matt and I will do without both kids for an entire weekend. 

Waverly has adjusted beautifully to her g-tube. We are actually taking her back to see the surgeon on Thursday to have the tube replaced with a longer one and to have some granulation tissue treated. Hopefully this can all be done without sedation, but we are having some minor issues with the tube being too tight. We have put together an easy feeding schedule that seems to be working for everyone. She gets the majority of her calories during the night whilst she is sleeping and then a short meal around lunchtime at school each day. I am so thankful for a classroom team that is comfortable and competent when it comes to her g-tube.

She has definitely been slowly down over the past few months. She can not longer go from a sit to stand position on her own. If she is on the floor, she simply isn't strong enough to get back on her feet. And even when sitting in a chair she can no longer pull herself to standing. She is still walking - a few steps independently, but primarily with adult support. She will hold my hand and take short walks around the house or yard. Her sweet disposition remains and she is the happiest little girl you will ever meet.