Meet the McNeil Family

Meet the McNeil Family

Thursday, December 30, 2010

Happy Birthday, Oliver!!

My little boy turned 4 years old today.  I cannot believe how quickly time is passing.   

Monday, December 27, 2010

Merry Christmas!

Waverly and Oliver had a wonderful time opening Christmas gifts.  Wavey really liked her new stuffed Barney.  It sings the "I Love You" song.  Oliver got a bouncing Tigger toy that was a huge hit.  The biggest excitement came when the kids opened a gift bag filled with jumbo chewy necklaces.  

Christmas Eve

Here are a few photos from Christmas Eve.  We took the kids to a service at a church that has a children's program for kids with special needs.  Waverly & Oliver had a ball.

Thursday, December 23, 2010

Busy Week

It has been a busy week preparing for the holidays.  I have tried to take advantage of the short time the kids are both in school to finish up last minute errands and shopping.  I think everything is wrapped and under the tree, ready for Christmas morning.

On Tuesday, I went to the kids' school for Waverly's holiday party.  I coordinated everything and I think it turned out fairly well.  The kids decorated cookies, colored wooden ornaments, made Chex Mix and stamped cards.  It was a lot of fun.  I enjoyed watching Waverly interact with her peers.  I was also able to get to know Waverly's 1:1 a little better.  She is incredible!  I am so thankful that she is working with Waverly.  She actually told me the cutest story.  A little boy in the 1st grade class that Wavey joins for music, PE, library, etc really seems taken with Waverly.  He came over to greet her and told Erin (the 1:1) that he loved Waverly.  Then he told her that Wavey is beautiful.  He may be my new favorite kid!

We just returned from a wonderful evening.  We went to Chipotle for burritos and then off to a local state park that has a Christmas light display.  We stopped for cocoa along the way.  The kids actually enjoyed the lights and kept looking out the windows - especially at the ones that moved.  It has become a tradition for us.

Wednesday, December 22, 2010

Merry Christmas

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Sunday, December 19, 2010

Waverly Sings her ABCs

Okay.  One more.  This is Waverly at 3.5 year old singing her ABCs.

Deep in the Hundred Acre Woods

Matt and I rediscovered some old videos last night.  This one was filmed days after we moved to London in 2007.  Hearing Waverly sing the theme from "Winnie the Pooh" after all these years made us so happy.  She hasn't sand this song for years, and she can't talk any more.  She's a little hard to understand, likely from her hearing impairment.  Nevertheless, it is a stellar performance by our beautiful little girl.  Enjoy!

Friday, December 17, 2010

Just a Toy

Oliver was carrying around a puzzle that is housed in a little suitcase-like box.  It was a puzzle I bought for Waverly when she was 2.  It has various zoo animals on it - she used to love going to the Columbus Zoo.  It is a large floor puzzle and I have a lot of memories of doing this particular puzzle with her.  Good memories.

All of a sudden, Oliver tossed the box onto the floor and it broke apart.  Ugh!  I was instantly upset.  For a moment at Oliver.  And then at the sadness this little puzzle reminded me of.

I miss Waverly bringing me the puzzle.  Helping to unlatch the box.  Handing me the pieces.  Dancing on the puzzle before I had a chance to finish it.  I think she thought the puzzle was her own little portable dance floor.

She used to say "puzzle".  I miss that, too.

The box lid will soon be taped back on with packaging tape.  It will remain in my possession for as long as possible.  A reminder of happy times.

1st Snow

We had our first snowfall yesterday.  Oliver's teacher took the class out to explore the snow before dismissal.  She snapped this photo of him and I love it.  The little guy loves *s*n*o*w*.

Thursday, December 16, 2010


Waverly has *VERY* quick hands.  If she thinks something is food or simply wants to put it in her mouth, she is lightning fast.  We are all so careful with her, making sure we don't have anything in her reach that could harm her or cause her to choke.  Today in school during snack time, she grabbed a plastic straw wrapper and stuffed it in her mouth before anyone could notice.  She started to choke, and her 1:1 & teacher assumed it was just her snack.  They came to her aid and thankfully her teacher noticed the straw wrapper in the back of her mouth.  She was able to reach in and pull it out quickly.  Phew!!  Thank God for attentive staff.

Oliver's Art

Oliver made this gingerbread house and tree in preschool.  Graham crackers are covering a milk carton (clever!) and the tree is an ice cream cone covered in icing.  His teacher said he had a difficult time putting the candy on for decoration, he just wanted to eat.  But eventually he got the hang of it.  

Wednesday, December 15, 2010


Oliver has been granted his wish!!  We will be heading to Disney World in February for one week.  He is going to have a wonderful time.  He is at such a great age for this trip.  He loves all things Mickey Mouse, Donald Duck, Tigger & Cars, so this is the perfect wish for him.  Let the countdown begin!! 

Saturday, December 11, 2010

National Harbor Holiday

We ventured down to the National Harbor for the Christmas Market and other holiday excitement.  Fortunately, it wasn't too chilly today.  We had a great afternoon.

Snack Time!

Matt snapped these photos of the kids enjoying snack time together.  They both love to sit at the little table for a treat.  Wavey's reach is a bit too long though and Oliver usually ends up with a half snack.

Friday, December 10, 2010

Christmas Shopping

Christmas shopping tends to be an emotional experience for me.  I ventured to our local Toys-r-Us yesterday, hoping to wander the aisles to find some gift ideas for the kids.  Waverly is 7, however I typically find her toys in the baby section.  Oliver will be 4 in a few weeks and I can still shop in the preschool area, being careful about any toys with small items they could choke on.  I had some ideas for Oliver going in, but no clue for Wavey.  And then, jackpot!!  I found a stuffed Barney that sings the "I Love You" song.  She loves that song and we sing it to her all of the time.  She used to sing all of the words....years ago.  She also loves Elmo.  I found a "Tickle Me Elmo" that giggles and vibrates.  And a cute Elmo cell phone that sings the theme song for "Elmo's World".

These may not be the toys that most parents are excited to find.  Noisy.  Some think they are annoying.  Commercial.  I see them as perfect.  Small items that will bring such joy to Waverly on Christmas morning.  These are not the typical toys for a 7 year old girl, but my little girl is anything but typical.  She is extraordinary!

Tuesday, December 7, 2010

Trimming the Tree

Yesterday I spent some time decorating for Christmas.  I lit my vanilla frosting candle (much simpler than baking) and played my favorite holiday album ("The Darkest Night of the Year").  I opened the trunk that holds all of our decor, took a deep breath and dove into the holiday spirit.  I decided to make things a little easier this year.  Just lights on the tree - no ornaments for the kids to pull off and put in their mouth.  I can't find a safe place for our stocking holders, so I took out my hammer and hung them on the wall.  The apartment feels warm and cozy.  I love the glow of the Christmas lights.  My spirit feels better.

Sunday, December 5, 2010


I have been feeling so sad the past few days.  My emotions have been right at the surface and any small thing can cause the tears to flow.  I received a report from Children's Hospital and it was the first one to list Waverly as 7 years old.  I cried.  Oliver attended a birthday part yesterday afternoon.  When we left, I cried.

Even preparing for Christmas has been difficult for me.  I haven't decorated or put up a tree yet.  I just have had zero desire to celebrate.  And the kids are unaware that anything special is coming.  I think that it part of it.  I am not sure why I should even bother.

And then tonight, I read about a friend.  Her daughter passed away 3 years ago tomorrow.  She had Sanfilippo.  She was a beautiful little girl - only 12 years old.


I was reminded that I am fortunate enough to have Waverly & Oliver here with me now.  It is okay to be sad.  It is sad.  However, I need to take advantage of the short time I have been given with them.  That means creating memories and moments with them, so I can hold onto them in the years to come.

The sadness is still intense right now.  The tears are flowing as I type.  But I am blessed to go kiss my babies good night, smooth back their hair and pull up their blankets to keep them warm on this wintery night.

Friday, December 3, 2010

My 7 Year Old

Waverly's teacher sent me some photos from her school birthday party.  This is my favorite one.  Erin, her 1:1, is showing Wavey her birthday cake.  Wavey knows a good treat when she sees it.

Thursday, December 2, 2010

Tiny Tots Holiday Concert

This morning Oliver's preschool attended a holiday concert at one of our local high school.  The band puts on a fantastic show for young kids.  They have kids dressed up in costumes of popular children's characters - Pooh, Tigger, Dora, Elmo, Big Bird, etc.  The band plays the theme songs associated with each character, plus familiar Christmas songs.  They teach the kids about slow/fast, loud/soft, the different instruments that make up a band.  It was a wonderful show.  Oliver sat beautifully while we waited for the concert to begin.  Once it started, he was on his feet clapping, climbing and hugging.  All in all a successful experience.

Wednesday, December 1, 2010

What Will I Be?

I often say that it is the little things that bring me joy.  Those same little things can also bring profound sadness.  Oliver has been obsessed with the Dora book "What Will I Be?" for the past few weeks.  He takes it back and forth with him to the car, he has taken it to school and doctor appointments.  For some reason, he has grown very attached to this board book.  I didn't think anything of it until Matt pointed out the sad irony.  

What will I be when I grow up?  We have all asked ourselves that question....I still ask myself that question.  Matt and I often say that Waverly & Oliver would be dentists if they could - Wavey loves to touch our teeth and Oliver loves a Dora book about going to the dentist.  I hate the conditional IF in that sentence.

To Oliver he is simply enjoying the pictures in a book, but to me it is a constant reminder that their lives are much too short.