Race For A Cure

Race For A Cure

We went to Wilmington Delaware this weekend to participate in a 5k run benefitting the MPS Society. A family who also has 2 children with Sanfilippo organized the event. 3 of my friends from high school all came into town to participate as well. The girls and I had a wonderful time on Saturday catching up and reminiscing. (We stayed up way too late to be in any shape to run a 5k early the next morning.) We walked it - with coffees in hand, as you can see in some of the photos. My parents also came down for the race and had a great time seeing the kids for a few hours.

It was a wonderful event. Over 300 people participated and it was a beautiful course through the riverfront of Wilmington. (Great job Jen & Carl!) There were a few other MPS families that also attended. It is always so fantastic to be with other families who can understand.

Oliver is preparing for the race.

Spinning with Daddy - notice the thumbs up

Lovely Wavey

Pretty girl

Ready to ride

The girls ready to *walk*

Walking with Wavey

Matt taking Oliver across the finish line

Comments

Messy and Wonderful said…

My husband and I watched the movie "Extraordinary Measures" last night. All I could think about were your sweet children and the race for the cure.

Praying.

June 15, 2010 at 10:36 AM

Welcome to Holland

By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.""Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay.The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.