House Guests

We had a wonderful week. Our friends came down for a few days from Boston for a visit. We met a few years ago, brought together by the shared diagnosis of Sanfilippo. We clicked, forming a friendship beyond a common disease. I have learned that simply having a child with Sanfilippo in common with another mom does not a friendship make. There is something special in connecting with another mom on multiple levels, where we can discuss real life in addition to the true understanding of what we face. 

Here are all of the kids at our favorite playground. Getting the kids to look for a photo is nearly impossible, but this was a great attempt.


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