Deep Breaths

October 16, 2015

Deep Breaths

Little girl is sleeping peacefully in her bed. I'm continuing to sleep in her room with her, unable to leave in case she needs me. Her breathing is rhythmic and quiet. A beautiful sound after the day I have had. I'm not ready to lose her. I'm not sure one is every ready. However today I begged her to stay. It's not time.

Thanks for your messages, phone calls, texts and prayers. They are reminders that we are loved and Waverly has made an impact on so many.

Comments

Chelon said…

Prayed for you all tonight. God is with you.

October 17, 2015 at 2:31 AM

Chelon said…

Prayed for you all tonight. God is with you.

October 17, 2015 at 2:32 AM

Alison said…

Praying for you and your beautiful girl all the way from Australia Xx

October 17, 2015 at 6:22 AM

Angie Bartos said…

Praying for you, Waverly, and the whole family... you are in our thoughts so often... your family is an inspiration.

October 17, 2015 at 8:11 AM

Welcome to Holland

By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.""Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay.The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.