The Appointment

I took Wavery to CHoP yesterday and it was wonderful. We met with 2 neurologists, one of them them is the chief neurologist at the hospital, and 3 therapists. We spent 2 hours answering questions and examining Waverly. Then they sent us to the lab for further blood work. Unlike in London, all of our results should be back within the next 3 weeks. They are also going to redo the MRI within the next 3 weeks. They do not think she has the characteristics of a leukodystrophy, but they are going to conduct lab work to (hopefully) rule it out. They are basically starting from scratch to determine what is causing all of the problems. The doctors and therapists were all WONDERFUL!!! We are going to go back on March 20 to go over the results and decide what we are going to do next. It feels so good to have a whole team looking at Waverly. They had all reviewed her case file before we got there, Wavey responded well to all of them and she was so well behaved. I am so thankful that we were able to come home and that my parents live so close to such a great hosptial. We didn't come away with any answers, but I finally feel like there are people who are determined to find an answer for us.

Comments

Ellen said…
Shannon, I am so glad it went well. What a relief to feel that answers are on the way and your daughter is in good hands!
Blaza said…
Shannon, your peace is a praise! I am elated after reading your message. How amazing to have a group of people dedicated to Waverly and to disovery. My prayers will continue on...for you all and for these doctors/therapists as they look at every option.
Sarah M. said…
Shannon, I am so happy that Waverly is getting the great care she deserves. That goes a long way, and as Elizabeth said, the peace it brings is such a praise. Know that we have been thinking of you all and praying for you all often. Looking forward to more great reports!
David said…
I'm so glad you have connected well with the team at CHoP - what a relief to have a group of people that feel like they are working hard for you. I'm so, so glad to hear this!
Laura said…
Hey - sorry; that last comment was me... David was logged onto his gmail account, and so it was automatically posting as him. :)

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