The Appointment

I took Wavery to CHoP yesterday and it was wonderful. We met with 2 neurologists, one of them them is the chief neurologist at the hospital, and 3 therapists. We spent 2 hours answering questions and examining Waverly. Then they sent us to the lab for further blood work. Unlike in London, all of our results should be back within the next 3 weeks. They are also going to redo the MRI within the next 3 weeks. They do not think she has the characteristics of a leukodystrophy, but they are going to conduct lab work to (hopefully) rule it out. They are basically starting from scratch to determine what is causing all of the problems. The doctors and therapists were all WONDERFUL!!! We are going to go back on March 20 to go over the results and decide what we are going to do next. It feels so good to have a whole team looking at Waverly. They had all reviewed her case file before we got there, Wavey responded well to all of them and she was so well behaved. I am so thankful that we were able to come home and that my parents live so close to such a great hosptial. We didn't come away with any answers, but I finally feel like there are people who are determined to find an answer for us.