Central Time Zone
We've arrived in Minnesota. It was a long day of travel and both kids were anxious to get to bed tonight. The nightmare that is getting through airport security with 2 kids who have Sanfilippo went better than expected. No alarms were set off, no bags searched and they held people up as we went through so we didn't have people breathing down our necks the entire time. The kids both did wonderfully on the plane - lots of snacks and movies on the laptop. It couldn't have gone smoother.
Tomorrow we will spend the entire day at the hospital. We will begin by meeting the doctor in charge of the study and then answer a million questions about their medical history, walk through the consent process and have some non-invasive tests done. It should be a relatively easy day.
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And carrying around their massive medical history binders!