Pain

Waverly is starting to cry again. A lot. It is horrible.

As many of you know, Wavey has gone through periods of crying in the past. We have had MRIs, X-Rays, blood work, urine analysis, etc to try to find a reason. Each time we find some abnormalities, but nothing that the specialists seem to identify as the root cause. Eventually the crying subsides and we continue to move forward.

A few weeks ago the cry began once again. We try some things at home - tylenol or ibuprofen for pain, adjusting her positioning in her chairs and bed, more stretching and massage. Nothing worked. I called her new Pain & Palliative Care doctor (he is wonderful). He increased the Rx pain medication she is taking and for the first few days we thought it was working. However, the crying is returning - most especially in the afternoons and evenings. Crying with big wet tears, bucking in her seat and often the inability to pacify her.

I have grown tired to trying to find a cause. I simply want to treat the obvious pain and allow her to be happy & comfortable once again.

I am waiting for our geneticist to call so we can discuss how we can move forward.