Today is World Rare Disease Day!!!
In the US, any disease affecting fewer than 200,000 people is considered rare. This definition comes from the Orphan Drug Act of 1983. There are nearly 7000 rare diseases affecting nearly 30 million Americans. Besides dealing with their specific medical problems, people with rare diseases struggle to get a proper diagnosis, find information, and get treatment. The rarity of their conditions make medical research more difficult.
Alone we are rare. Together we are strong.