Colonial Waverly

Colonial Waverly

Waverly's 4th grade class had Colonial Day on Friday. All of the kids were dressed up and participated in events. They made candles, leather journals, beaded necklaces, played period games. It was a super fun event and I thought Wavey looked adorable.

Comments

Kathryn said…

She's so cute! I did something like that in the third grade.

March 25, 2014 at 9:55 AM

Kimmy said…

Hi,

I have heard about Sanfilippo syndrome through a story of another family and wanted to learn more. The family I follow is in Europe, they have 8 year old Sara and 6 year old Jacob with Sanfilippo. Waverly and Sara look so similar - beautiful thick hair styled in two pigtails.

I don't know what to say - but I read your post about what to day - so this is me say "hi". I will follow your blog and think about you and your family. Thank you for sharing your story. Waverly's classmates are not the only ones who will learn from your experience (re the Waverly's Birthday Party post).

And good for you not to say sorry any more about any inconvenience caused by a wheelchair or Oliver's impatience - I couldn't agree more.

Kimmy

March 26, 2014 at 8:07 AM

Welcome to Holland

By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.""Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay.The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.