It has been an incredibly long two week journey. We thought dystonia would be the diagnosis, but after seeing a few specialists they believe Waverly is having seizures. They are both terrible diagnoses, but more is known about seizures so I see it as the lesser of two evils.
We started her on a seizure medication this morning. The side effects are moodiness, aggression or drowsiness. I am keeping a close eye on her today and for the next few days as we wait to see if this particular medication is a good fit. I have been warned that there is a lot of trial and error with these meds. Hopefully we can find the best option quickly with minimal side effects.
I have to admit to being utterly exhausted throughout this ordeal. Each new phase is painful, but I have been dreading the start of seizures. Wavey has not been herself and I hope to see the twinkle come back soon. I miss her.