Meet the McNeil Family

Meet the McNeil Family

Friday, January 6, 2017

Double Digits


Sweet little Oliver turned 10 years old on December 30th. Double digits are a big deal. His birthday often gets lost in the midst of the holidays. This time Matt took off for the day and we tried to do some things he loves. We started at our favorite bakery and filled him with mixed berry croissants and maple doughnuts. Then lots of Mickey Mouse Clubhouse combined with snuggles on the couch. I made a pot roast and my parents joined us for dinner. We ended the day with his favorite - ice cream.

I have written about the difficulties of birthdays for years. Most parents want time to slow down, but those of us raising children with life limiting illnesses especially want to savor each moment and pause time. As much as I want to celebrate Ollie turning ten years old, I also mourn another year passing.

Our son with an old soul is slowing down. He isn't walking as far as he used to. He would rather snuggle on the couch than bounce around in front of the tv. And his swallowing is deteriorating so much so that I see us utilizing his g-tube sooner rather than later. When he gives you eye contact, he looks straight into your soul. He is my gentle giant.

1 comment:

Anonymous said...

Thinking you guys.

The Lowreys