Sinking In

I can't believe it has been one week since we learned that Waverly has MPS III. We were supposed to fly back to London tomorrow night. We rebooked our flight for next Saturday. We are hoping to get an answer back from our insurance company on Monday or Tuesday (we spoke with our contact today). Our neurologist is hopeful that Oliver's results will also be in some time next week. Once we have more information, we hope to be able to make some plans. Everything feels so up in the air. We aren't sure about so many things..insurance covering our initial trip to Duke, the transplant, returning to live in London, moving to the US. Each day I feel like we are realizing just how huge of an impact this is going to have on our lives.