We Have A Diagnosis

Waverly has mucopolysaccharidoses (MPS), specifically it is known as MPS III or Sanfilippo Syndrome. Even though we have been waiting anxiously for a diagnosis, nothing could have prepared us for this devastating news. I am not emotionally or physically capable of writing more at the moment. Here is a link for further information: http://www.nlm.nih.gov/medlineplus/ency/article/001210.htm

Comments

Mike and Sarah said…
My heart is breaking for you. I'm so sorry to hear the news. I am praying for you!
Blaza said…
Shannon and Matt...I am praying as well.
Shannon and Matt--what heartbreaking news to receive about your precious little girl. I am so very sorry, and I promise that I will be praying for you, too.
BrianC said…
Shannon & Matt, I am so sorry. I have been and will continue to pray for all of you.
Ellen said…
Shannon- WOW. I'm sooo sooo sorry. There aren't words.
Sarah M. said…
This comment has been removed by the author.
Sarah M. said…
Shannon and Matt--we love you and are here for you.
Unknown said…
Oh Shannon... Having just seen you and met your precious family, our hearts are just aching.
Laura said…
Shannon and Matt, my heart is so heavy for all of you. Please know that David and I continue to pray for you. I'm sorry. So sorry.
The Nyce Family said…
Chris, Rasa Lila, Priya and I were deeply saddened to hear about Waverly. Our thoughts and prayers are with you and your family. Please let us know if we can help in any way. All of our love...Rukmini and family
Unknown said…
hi matt & shannon,
this is michele's brother. my wife, Jenni, and i are praying for you. just wanted to let you know that God has an emergency hotline number for times like yours. a mom of a child with down syndrome once told me about the number. it really encouraged her when she received the diagnosis. thought it might encourage you too. the number is not 911, it's 411
Exodus 4:11
Revelation 4:11
You are loved!
Heidi said…
Oh Shannon...I am so sorry to hear this. You all have been in my thoughts since Jenn told me the situation. We are thinking positive thoughts for you and your family.

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