MPS III A

Tomorrow is going to be a big day for us. Both of the kids have MRIs in the morning and we are meeting with the doctors in the late afternoon to go over all of the results from the week. We did find out that Waverly has MPS III Type A. Our neurologist in PA called us today with those results. The doctors here suspected she has Type A. It is usually regarded at the most severe type. It is most likely that Oliver has the same type.

Comments

Ellen said…
Praying for you and thinking about you tons this week. I hope tomorrow brings some clarity.
Blaza said…
Just like all of your friends here, we continue to pray for you all...especially this week...even more especially today.

Love you all!
Unknown said…
praying for your family!!! and praying that God gives you & Matt wisdom through all these decisions!! your children are a beautiful gift from God!
Misty said…
Hi Shannon, I got your blog info from Ellen, and have been reading it to update myself. Talbott and I will be praying for you and Matt as you make these decisions in the days ahead. I can't imagine all that you are going through right now!
The Nyce Family said…
Hello Shannon...I just sent you an email through hotmail without looking at the blog and the updates first...so please excuse me for not knowing that you are back in the states and facing such a tough decision. I am reading more and more about this disease. We are praying for you while you make your tough decisions. We love you and will be thinking of all of you. You are truly in our thoughts and prayers. Please let me know if there is anything we can do. Love...Rukmini, Chris, Rasa Lila and Priya

Popular Posts