Heartbroken
I had a bad day. I visited Waverly's new school and I was not impressed. I am not sure they understand the severity of her condition. I feel lost and confused by the system and I wish that I hadn't left the safety of our therapy & school in London. Matt and I were both incredibly sad tonight. Waverly is changing before our eyes. Every day we lose a piece of her - not in a cliche way. I mean we can actually see things she can no longer do. She can't answer the "what's your name?" question. She can't use a spoon anymore. She can't hold a crayon anymore. It is heartbreaking. This whole situation is so incomprehensible. I cannot fully grasp the fact that both of my kids are dying and I am watching it.
Comments
Praying in Missouri
Bonnie
*Jawn*
This is horribly unfair, and it makes me so angry that you all have to go through it. I wish there was anything in the world I could say to make you feel even the tiniest bit better. Instead, I just want you to know that there's a complete stranger in Ohio who cries for you and your kids, and who is SO VERY ANGRY at the unfairness of what you are going through.
Super-angry, but still praying for a miracle.
I remember crying harder than ever after visiting Clay's first school. It was awful. I thought my heart would break. Feeling like no one understands the severity of your child's condition is one of the lonliest feelings in the world.
I know I have already said this, but I think of you and your family every day and I keep praying. Just praying and praying for your beautiful children.
I think it is very wise to express how this is affecting you. I've been checking everyday. I will continue to, and will continue the prayer. I'm sure you are furious at God right now, and rightly so. I am praying about your relationship with him as well. Things like this can bring you closer to him, or further away. I will pray that you find comfort in him, despite the pain and confusion about what's happening and why. I do think he can comfort, even in this situation. Again, I am so sorry. I don't know you, but I sure wish I could do something to help.
i am so very sorry.
i read your blog everyday.
We praying for you. We have your blog on our prayer list :-)
I wish we could be near you and help in anyway possible. I wish we could make this entire situation disappear.
Our little church plant has you covered in prayers as well.
Courtney and Dan
i came across your blog yesterday and since then have been reading up on your story. my heart breaks for you guys. i cannot comprehend what you are going through. just thought i'd let you know there's one more person praying.