Retreat

Matt and I were able to get away last night and enjoy a night at the Glasbern - a beautiful B&B just a few miles away from my mom's house. We actually honeymooned there almost 10 years ago and we have always wanted to go back. We had our own little cottage and I had packed a picnic dinner. We spent the evening on the balcony eating, drinking and having a wonderful time. It was a much needed escape for us. I was sad to have to leave this morning.

My great aunt passed away last week and I was able to attend her funeral on Saturday. It was sudden and so sad for our family. It provided a time to see family I wouldn't normally see.

A friend of mine gave the kids some wonderful gifts of toys on Sunday. Her kids were sad to think about having to pack up all of their things and not see them for awhile, so they picked out some items for Waverly and Oliver. (The bubbles, books, animal train and stuffed Pooh Bear have been HUGE hits, Kristin!! Thank you so much.)

We had an appointment at CHoP and did get some additional results. We found out that Waverly's enzyme level is zero, meaning she is totally unable to break down the problem causing protein. Some kids with MPS III still have a low level, but she has none. Our neurologist confirmed that this will mean Wavey will have the most aggressive form of the disease. We are still waiting on Oliver's numbers. This was proof positive for Matt and I that returning to the US and creating a home here is the absolute best decision for our family.