Surgery Consult

We met with the pediatric surgeon at CNMC this morning. She was very nice and is ready to move forward with the surgery, as soon as we have an anesthesia consultation. Timing wise, the surgery couldn't happen soon enough. I had such a difficult time feeding Waverly dinner tonight. She was struggling so much. She held the puree in her mouth for minutes at a time and fatigued quickly. In the past week, her weight went down by over 3 pounds. I know weight can fluctuate, but this seems like a lot. I am truly worried about her.


Anonymous said…
It has been a little while since I've been to your blog. You do not know me, but I feel like I know you guys through this blog. I am praying for YOU and your sweet girl right now. Praying she has a successful surgery that will bring some relief.

JoEllen in Ohio
PK said…
Not sure if this went through the first time...
Just wanted to let you know that I am here reading your blog, praying for you, thinking about you, and hurting for you as your family walks this difficult journey. You and Matt are doing a great job in a very difficult situation. Keep up the good work.

Popular Posts