It took so much time and energy to get this piece of equipment, but it has finally arrived. Yesterday we were able to pick up Waverly's new wheelchair. It is a Quickie Iris Tilt. You may not be able to tell from this picture, but some of the frame is purple, while the rest is black and gray. That huge padded seat is memory foam, making for a plush ride. It sits straight up as shown and can also tilt back to al most laying position for when/if she falls asleep. There is a great tray so she can play with toys and books easily as she rolls around.
It is most definitely not going to be confused as a pediatric stroller. We have entered a new phase. There is no hiding Sanfilippo Syndrome with this ride. However, it is going to serve her well. It allows us the freedom to add on items as she continues to decline that will accommodate the changes.
Once again life looks different for our family. We are adapting to new equipment. Adjusting to our new normal.
Now to find the perfect fashionable bag for her chair...