Meet the McNeil Family

Meet the McNeil Family

Tuesday, November 10, 2015

An Update

I don't want to take the time to summarize the past few days. That I will save for times of reflection and processing.

Wavey is still with us and bringing joy to each and every moment. She had a little rally over the weekend with some brighter eyes and even a tiny smile for me yesterday morning. Yesterday afternoon she began having more neurological symptoms. She was having small seizures and then one large one that was terrifying for all of us. Her little face looked so pained and she cried for the first time in weeks. It was heart wrenching. Her medications didn't seem to break the cycle and it took multiple doses before she finally fell asleep in peace for the night.

Last night our favorite doctor popped in for a visit. She has been out of town and after a long day at NIH drove to our home to see Waverly. It meant so much to us to have her here. She *knows* Wavey. And we trust her implicitly. We talked through what we have seen, what decisions we have to make, what is to come. Over the past few days I have felt overcome with feelings of regret and fear. Nervous we missed something or made a wrong turn. Her reassurance filled me with such a sense of peace.

Day by day.
Moment by moment.

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Thank you to everyone who has brought food, sent flowers & balloons, mailed cards, delivered candy, prayed, thought, texted, emailed, drove Oliver around, visited, shopped. We are grateful for our tribe of support and love.

14 comments:

Anonymous said...

Thank you the update. We have all been thinking about the four of you. Sending peace for your hearts, calming thoughts for your minds, and all around love. So thankful you got to see a spark in your girl's eyes. What a gift. You are amazing parents who take great care of your littles and give them such a happy life. Hugs.

Katie said...

Tears....praying across the miles...trusting our Savior's mighty hand to hold you through this fierce devastating storm.... Because of Christ, Katie Paull Isaiah 40:31

Laura Darrow Davenport said...

Always remembering the little story you shared years ago...

"The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts."

You certainly have embraced "Holland" each and every day. so much so, that there doesn't seem to be any room for regrets or wrong turns. How wonderful for Wavey to have you and Matt as her mum and dad. She is one loved and adored little girl...her cup is overflowing :)

xoxo
Laura

Morgan said...

Another SF family praying for you all from Oregon. "Our soul waits for the Lord; He is our help and our shield." Ps 33:20

Anonymous said...

Thank you for updating us all! I have been praying non-stop for all of you - and will continue. Hugs and prayers!

Jill V.V. said...

Thank you for taking the time out of your day to update all of us. You and your family are prayed for daily. I pray for angels of comfort and peace to surround Waverly and for Waverly to have painfree days and for you and Matt and Oliver to have angels of strength & comfort surrounding you

Anonymous said...

I met you and Waverly once at the Oakwood during pancake breakfast. I had an infant. Waverly made her laugh. My prayers are with you and your entire family. I have followed you via this blog and always left feeling inspired, hopeful, and awed. Peace be with you, God will carry you when you are tired.

Anonymous said...

I'm in your town for a layover and I hope you can feel the love still coming from just a little closer. I'm headed to London and have been thinking about the times I saw you all there. Thinking of you guys.

Heidi

Anonymous said...

Your family and sweet Waverly are in my thoughts.

erin heiser said...

Love you. Thinking of you constantly. So glad to hear an update. XO

Laura C. said...

Matt and Shannon, I would love to send a letter- would that be possible?

Anonymous said...

Oops! I see now that you have to approve the comments- my bad! I kept resending it thinking my internet wasn't working :)

Laura

Terry Johnson-Vann said...

Waverly and Oliver are truly blessed to have you and Matt as their parents. You continue to be in my daily thoughts and prayers.

Cheryl said...

Praying peace over you, Wavey, Oliver, Matt. You are fully in our thoughts and prayers. Our hearts are with you.