Heading To North Carolina
I am taking Waverly to Duke on March 31 for a week of outpatient testing. There is a doctor there who believes Wavey is a good candidate for a cord blood transplant. While this will not stop the progression of MPS, it will combat some of the symptoms and delay the onset of some others. This means a 6-8 month move to NC for the transplant. We are still working out details on how to make this work. Some of you have asked about Oliver. There is a chance he has MPS as well. He is going to undergo a test and we will get the answer back in one (VERY LONG) month. Please pray for us. This continues to become bigger than all of us. Some of you have also been wanting to help in any way. As we discover needs, I will be asking for your help. Thanks for all of your prayers. We long to be surrounded by them right now.
Comments
Jessica and I have been praying and will continue to pray. I am very sad to hear the news, as Maggard has been keeping me up to date.
Bill Claybrook
Guy and I have put your family on our prayer list at our church. This is in the Lord's hands now. Trust Him. He loves your family so much. Remember, what He brings you to, He will bring you through. He is the Great Physician. He is still in the healing business. We are praying for a might miracle, that He will heal your precious little girl, and that your wonderful baby boy will get a clean bill of health. Please let us know how we can help in a more tangible way.