Insurance...AHHHHHHH!!!!

We have just been denied by our insurance company to pursue testing at Duke. They do not include MPS III on their "approved for bone marrow transplant" list. We are, obviously, going to take up the fight to get them to make an exception. We are also working with those at the State Department who manage the health insurance policies to see if they can make an exception. Please pray that we can get approval for this. Even if we decide against the transplant, we really want the opportunity to visit Duke, go through the tests and make the most informed decision possible. We hope to get some answers asap. Pray!!!