Some News

Some News

I spoke with one of Wavey's neurologists yesterday. (Have I mentioned how much I love our doctors!) She said that the 2 most important tests are still pending, but the other tests have come back normal. The MRI is still abnormal. She is going to compare Wavey's 2 MRIs to see if there have been any changes - positively or negatively. She has also referred us to a metabolic doctor. They found a few more issues regarding enzymes that they want to research more fully. So, no real news...other than the comfort I find in having doctors determined to help us. We are confident that on March 20th we will have more information and a detailed plan on what we are going to do next.

Comments

Blaza said…

Shannon, as you said...it is so reassuring to have these awesome people working on Waverly's behalf. How wonderful to have an update within days of the MRI...even if it is to say "we're still looking into some things." I would imagine that after waiting 3 MONTHS for results previously that was such a delight. We will continue to pray for these doctors as they continue their search for answers and a plan!

March 9, 2008 at 11:19 AM

Welcome to Holland

By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.""Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay.The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.