Cloud 9

I am still on cloud 9 after my time with the other Sanfilippo families. Both Matt and I have a renewed sense of love for Waverly after our time with Jessie & Mackenzie. We realized, yet again, that we need to appreciate who she is today and take advantage of our time with her. There are so many changes ahead, scary changes. It is easy to get wrapped up in what is going to happen, instead of taking the time to celebrate the moment. I honestly feel like my love for her deepened.
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Anonymous said…
Shannon, I read in the forum that you're househunting. I don't have an MPS connection but found the forum in a roundabout way through a friend with leukemia. I grew up in Riverside Estates in the Alexandria part of southern Fairfax county. The houses are 1960's vintage, large and relatively affordable. Good luck in finding a home.
August 18, 2009 at 9:20 PM
The Leivas said…
I know that this may offend parents of kids without MPS but I really do believe that parents of kids with sanfilippo syndrome (or other special needs) really do love and appreciate their children differently. They cherish them in a whole different way. I'm trying to look at this as one of the "blessings" of this terrible disease (although that's such a stretch-to see blessings in the awfulness that is Sanfilippo syndrome).
August 19, 2009 at 8:18 AM
kelly said…
this is so beautiful to read...
August 19, 2009 at 11:24 AM
Joanne said…
Hi Shannon,

I loved the photos you posted and reading about your day last week with other Sanfilippo families. It's amazing what an impact a day like that can have. I too felt a huge change for many days thereafter when we met other MPS famlies. You described those feeling so well! Joanne, Sasha's Mom
August 19, 2009 at 11:28 AM
Cari said…
I miss you guys! Wavey reminds me so much of a younger Jessie. They have such a similar, sweet personality. I am so glad we got to spend some time together--for so many reasons!
August 21, 2009 at 8:57 AM
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