We had the opportunity to spend yesterday with 2 families who each have a daughter with Sanfilippo. They are all within 3 years of one another. We had a picnic, played at the playground and enjoyed some time at the pool. It was such a special day. There is something truly amazing about being with another family that understands. There was no need for explanations or apologies. We are all used to the hair pulling, throwing objects, chewing on everything in sight. I loved being able to learn from their experience. We made some wonderful new friends.
Waverly & Jessie (don't they look like sisters)