About a year ago a local reporter wrote a story about Waverly & Oliver in our weekly paper. A few days after the article was published we received an email from a local woman whose son passed away from Sanfilippo 25 years ago. The moment she saw Wavey & Oli's picture, she recognized the full zips, protruding tongue and button nose. Immediately, she knew they had Sanfilippo.
We began exchanging messages and about a month ago, Oliver & I met her for lunch. We had such a lovely time sharing stories about parenting a child with MPS. As Oliver dashed around the patio area, she knew exactly how to wrangle him back onto the sidewalk. Experience.
Last night, she and her husband invited us over to their home for dinner. We had so much fun. There is an understanding among Sanfilippo families that is so special. There was no behavior explanation required. Wavey stayed near, while Oliver enjoyed exploring and finding his favorite walking path. We saw pictures of their son and heard stories about his childhood. They noticed similarities between Oli and their boy - both physically and behaviorally. I think Oliver brought back a lot of memories for them. Matt & I appreciated the opportunity to talk with another couple who has been through this. It was a wonderful evening.