Improvement

Improvement

Well, the Ibuprofen seems to be doing the trick. Waverly has been happy the past few days. No evening weeping and last night she was actually giggly. Both Matt and I commented that the real Wavey was back. The rheumatologist said it could take a few weeks for the higher dose to begin its effectiveness. It has been 2 weeks and I think we are moving forward. She is still resistant to touch - she cried for most of her PT session and cries when I attempt to do her stretching. I hope her joint pain continues to decrease. We meet with orthopedics in a few weeks to discuss her hip problems. I hope we will have more answers and direction after that appointment.

We are still waiting for news on the house. Our realtor said it would be at least 30 days before we hear anything. It has been 7. We are hopeful that the sale will go through and we can move in sometime this summer. We would love to be all settled before school begins in September. And we will be able to walk a few short blocks - perfect location.

Comments

Welcome to Holland

By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.""Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay.The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.