A Glimmer of Hope

A Glimmer of Hope

We think we may have found a work around to our insurance issue. There is another plan we can switch to, upon a transfer back to the US, that WILL cover transplants for MPS Type III. It is written out as plain as day in their specs. We have spoken with a few people at State that have confirmed this for us. We will work out details tomorrow when folks at back to work in London. This is great news for us though!! We may be able to be at Duke by the end of the month!!

Comments

bome62 said…

Praise the Lord, this is an answer to prayer.
Bonnie Meyer
Washington, Missouri

April 1, 2008 at 5:30 PM

Alicia said…

Amen!!

April 1, 2008 at 6:49 PM

SioMcLucky said…

thank heaven for that news, please keep us posted and you are in our thoughts and prayers. Please give wavy and ollie hugs from me!!
Siobhan McDonald
AZ/London

April 1, 2008 at 7:00 PM

Beth Strawhun said…

Matt,
Kasey Hitt just forwarded me your blog and I want to tell you that I will be praying for you, your precious daughter and your family.

April 1, 2008 at 8:02 PM

Lizze said…

I won't pretend to understand the whole insurance situation, however, I know how much of a pain and additional stress dealing with insurance companies can be. I'm praying extra hard for you guys - on all fronts. *hugs*

April 1, 2008 at 9:34 PM

Welcome to Holland

By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.""Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay.The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.