Cardio

Good news.  We took both kids to Children's this morning to meet with a cardiologist.  Kids with Sanfilippo sometimes have heart problems, so our geneticist recommended forming a relationship with one and getting a baseline.  It was a great appointment.  Our doctor was wonderful.  Both kids had blood pressures taken, an EKG and an Echocardiogram done.  (Much more thorough exam than I was expecting.)  The doctor didn't see anything to cause concern - everything looked good.  Whew.  Oliver had a lot of heart and lung issues at birth and he had some elevated blood pressure issues, but everything is fine now.

Tomorrow we will meet with our neurologist - again just to form a relationship and get a preliminary exam.

In other news, Oliver has really started to improve in signing.  He actually used 2 signs together last night - "want" and "eat".  (Most of his signs revolve around food.)  He now has about 8 signs in his vocabulary.  I am so proud of him.  It is sad that in the midst of celebrating his accomplishments, Matt and I can only think that in a few short years we will begin to see all that he has gained disappear.  But the more we can teach him today, the more difficult it will be for Sanfilippo to take away.