PT

This morning we had our first appointment with Waverly's physical therapist.  I am become quite picky with therapists & doctors.  If there isn't a good connection, I look for someone else.  It is too important to waste time frustrated with a poor relationship.  Today was our lucky day and we found a wonderful therapist.  I was thrilled with how she handled Waverly.  She played music and sang to soothe to her.  She had done research on Sanfilippo and came knowledgeable.  (That makes such a HUGE difference!!).  She was quite concerned with Wavey's right foot.  It is really beginning to turn in and is causing her difficulty with movement.  She recommended that we see a doctor of physical medicine at Children's.  Even in the midst of watching these terrible changes in Waverly's body, it is so comforting to have people working to help her adjust to the changes and make the transitions as pain-free as possible.  

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