Neuro

October 28, 2008

Neuro

I think I spend most of my time driving to, waiting for, attending or arranging doctor appointments and therapy sessions. But, I do not mind. Having such a great team of people working with our family makes life easier.

Today we met with our new neurologist. Once again, I think we have found a doctor that clicks with all of us. He was kind and thorough. He is referring us to an orthopedic doctor. They want to check the kids' spines and work with Waverly's leg. Her right foot is really turning in and without some type of intervention, she could damage her muscles.

I also wanted to take a moment to thank all of you who have visited the website www.ahundredforahome.com. And thank you to Kamarah & Michele for organizing it, Megan for creating the website and Laura for managing the facebook cause. I am amazed and inspired by your love for my children.

Comments

Anonymous said…

Dear all,

I bumped into Jennifer Ross today at the embassy who kindly gave me your contact details. I have cried my way through your blogs and cannot imagine what you all must be going through! The pictures of the kids are absolutely stunning! Please know that you are in our thoughts daily and you are not forgotten at the Embassy Health Unit in London! With all my love,

Linda Van Leuven

October 28, 2008 at 3:15 PM

Welcome to Holland

By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.""Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay.The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.