December Already

I cannot believe it is December already.  Fall always goes by so quickly with birthday celebrations and Thanksgiving.  I have a feeling December will fly by as well.  I have been working on Christmas shopping for the kids.  It is becoming easier.  I used to get hung up on what I wish Waverly would like to play with, instead of what she is able to play.  I found some great chewy type toys and those that can attach to her chair/stroller with links.  Oliver still loves to explore new toys, but I am choosing ones that I think will be useful for a longer period of time.  Plus no small pieces!

I remember when the kids were first diagnosed, other parents of children with Sanfilippo would say "it gets easier".  I thought they were crazy!  But I think that I am beginning to understand their point.  The pain from the diagnosis doesn't lessen.  In fact, the depth of sadness from the disease grows.  However, I am becoming used to our new normal.  My expectations have been adjusted and it seems easier to cope with the day to day.  This doesn't mean I don't have moments or situations that overwhelm me or cause me to breakdown.  I do!  However, the shock has worn off and I am settling into life as I now know it.  It only took 20 months.