Meet Sasha

Yesterday we had the wonderful opportunity to spend time with another Sanfilippo family.  I met Joanne on an MPS forum and we quickly connected.  Her daughter, Sasha, is 11 years old and was diagnosed at the same time as Waverly.  Sasha is such a beautiful girl with a captivating smile and so incredibly mobile.  It was nice to finally give her a great big hug.  Waverly cried the entire drive into DC, but once she was surrounded by everyone she calmed down and did beautifully.  We met them at the Air & Space museum and then headed over to the Natural History museum.

Waverly & Sasha


Wavey wishing that food was real.


Admiring herself in the mirror


Joanne & Sasha

Oliver loves the tvs embedded in the floor of the Natural History Museum

Comments

Jenkins said…
What a fun adventure!

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