PLEASE Help - National MPS Awareness Day

Please take a few moments to contact your Senators and ask them to support the resolution to designate May 15 as National MPS Awareness Day.  You can call, fax or email.  There are sample letters to help you know what to say - include how Waverly & Oliver and the other children with MPS affect your life.  Lets work together to bring awareness!!!  Thank you.

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The Time for Action is now to secure co-sponsors for Senate resolution designating May 15, 2010 as National MPS Awareness Day.

The deadline is May 7, 2010.

We need your help.  MPS Awareness Day is fast approaching and our voices need to be heard on capitol hill to continue to raise awareness of MPS and related diseases.   Senator Lindsey Graham (SC) is again sponsoring this year’s resolution proclaiming May 15, 2010 as National MPS Awareness Day.

We are asking you, your family and friends to contact both of your United States Senators and ask to speak with their Health Legislative Assistants (HLA).  Their contact information is available at www.senate.gov.  If you click on the upper right hand corner by your state, you will see their contact information including phone, fax and email addresses.  

• If calling your two Senator’s offices, ask to speak with the Health Legislative Assistant (HLA).  If you get their recording, be prepared to leave your message.  We have attached a suggested script for calling, faxing or emailing.  Explain to the HLA that you are a constituent and give a brief description of how MPS or related diseases affects your lives.  Let your HLA know the purpose of the resolution is to raise awareness and recognize affected individuals and families and ask for them to co-sponsor this resolution.  You can offer to email or fax the text of the resolution.
• If emailing or faxing, address your correspondence to your Senator in care of the Health Legislative Assistant (HLA).  You can use the attached sample letter to personalize for your family or affected one, also explaining how MPS has affected your lives and the purpose of the resolution.  Then attach the resolution to your correspondence.

VERY IMPORTANT:  Be sure and have your HLA or Senator contact Senator Lindsey Graham’s office and speak to either Colin Allen or Leigh Ellen Lybrand at 202.224.5972 to sign on as a co-sponsor. 

If you have any questions feel free to contact any of the legislative committee board members or call our office.

Thank you for your help.  Your voice is a powerful tool in raising awareness for MPS and related diseases.