Inventor Needed!
***Someone needs to invent a double special needs stroller. While there are not many of us with this need, you would make some exhausted families quite happy.***
The kids had doctor appointments today at our local Children's Hospital office with our Physical Medicine doctor. She is wonderful. She manages the kids' mobility and also assists us with durable medical equipment needs, like Wavey's feeding chair, wheelchair and orthotics. Trying to wrangle both kids by myself is a challenge. I put Waverly in her wheelchair and Oliver held my hand. He is still a good listener, but he is becoming more and more hyperactive. While in the waiting room, he ran across back and forth dozens of times. (Thankfully it was empty, so he could do this safely.) The most difficult moment was trying to get Wavey to stand on the scale. She doesn't like scales, so it requires a lot of effort on my part to keep her standing long enough for her weight to be measured. While holding on to her, Oliver took off down the hall. Thankfully he only made it to the waiting room, where "Jungle Junction" grabbed his attention. (Thank you, Playhouse Disney!)
Oliver is still doing great. There wasn't much change since our last visit, which is excellent news. No need for orthotics...yet. He needs to continue wearing his inserts and hopefully with stretching and exercise he can maintain his range of motion for another 6 months. Waverly had definitely regressed. Her stamina has decreased and her range of motion has decreased. She hasn't been walking well in her orthotics, but the doctor was able to change the structure of the orthotics to make them more useful. We immediately noticed a change in Wavey's gait, so hopefully we will be able to see some improvement in her walking ability.
Comments
check this out
http://www.ottobock.com/cps/rde/xchg/ob_com_en/hs.xsl/1382.html
Thinking of you and praying,
Monika Zavadilova - mom of two Sanfilippo children (5 and 3)from the Czech Republic