We've Lost Another

I just found out that yet another little girl has passed away tonight.  Please keep Jasmin's family in your thoughts and prayers.  I am heartbroken for them.

This is the 3rd child who has died from Sanfilippo in the past 4 days.  As you can imagine, it has shaken our community.


Sara said…
I can't even imagine how the last few days have been for the entire community. My prayers are with your immediate family and the entire community. Thank you for sharing your journey with us.
Shannon said…
She was only 12 years old :-(
Joanne Huff said…
Thanks for writing about all of this, Shannon, you summed up this series of events so beautifully. This has been simply a surreal moment in time, and I am numb with disbelief. The aftershocks will be felt for some time, I think, as we all are reminded of our childrens eventual fate. Sorry to post with such sadness tonight, but it's just been so very sad this week. Hugs to Waverly and Oliver, you and Matt. Love, Joanne

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