A Good Night (Thanks, Dede!)

We spoke with a contact on the appeals board for our current insurance. They are going to make a final decision by Friday, they hope. They asked for the government's personnel management office's opinion on the matter. I am hoping they are advocating FOR us. If they come back with a "no", we will begin the process of curtailing from our post in London and relocating to DC. This will allow us to switch insurance plans to the one that will cover transplants for MPS. It feels so good to know that we can get to Duke, with the help of insurance. Now it is just which and when. Waverly is doing really well. She has been saying a few new words within the past few days, which is always exciting for us. The warmer weather has been a God sent, because she loves to be outside. It burns off energy and creates a calmer little girl when we are inside. Oliver is also doing well. He is getting closer to walking - every day he is more steady on his feet. He is such a happy little boy! Matt and I are doing well, all things considering. Having a way to get Waverly to Duke has made a dramatic impact on our overall spirits. Now, to work on getting Oliver's results back and getting to NC as soon as possible. Those are our next steps.