No News Is NOT Good News

No News Is NOT Good News

Yesterday went by without a peep from anyone we are so desperately waiting to hear. The waiting is incredibly difficult. We feel like we are wasting so much precious time. We are praying that the insurance company calls today with good news - that Waverly's time at Duke will be covered. If that happens, we will be on the first plane, train, or automobile that can get us there. If that doesn't happen, we will be beginning a appeal to the State Department to change its policy. We want so badly to meet with the doctors at Duke and get an idea of what Waverly's prognosis for the next few years will be potentially. Our neurologist did write, letting us know she has contacted the director of the lab doing Oliver's test, stating our situation and that she would like the results asap. Pray that the director listens, responds and delivers quickly. Thanks to all of you!!

Comments

E said…

I woke up this morning with your names heavy on my heart. I've been praying for you all morning. Waiting is so hard. Praying the the wait won't be much longer and that the news will be GOOD!

April 1, 2008 at 12:02 PM

Mike and Sarah said…

Still praying.

April 1, 2008 at 12:59 PM

Lizze said…

Loads of prayers and positive thoughts coming your way from here too.

April 1, 2008 at 1:06 PM

Welcome to Holland

By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.""Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay.The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.