A Plan
I think that we have a tentative plan in place. We are going to fly back to London on Saturday. Matt can get back to work for a few weeks, Waverly can get back in therapy, and we can enjoy the beautiful city we call home. We are going to be back in the US at the end of the month and spend April 28th thru May 2 at Duke. We will have Oliver's results by then. If he does have Sanfilippo, they have arranged to have him tested at the same time. At the end of our Duke visit, Matt and I can make a decision about the transplant and about the choice of returning to London or moving back to DC. We were not ready to return to the UK last weekend, but we feel good about getting back there now. We have a plan and a way to get our little girl the medical help she needs. It feels GREAT!!! God has been answering our prayers consistently these past few weeks. It has been amazing to experience. Thanks to all of you for beginning this journey with us.
Comments
Matt, you may not remember me but I went to school with you growing up. Through a prayer request from a friend, I heard of Waverly and Oliver and the struggles you are facing. I just want you to know that you and your precious children are in our prayers - and in the prayers of many, many others as well! Take care and God bless.
Amanda (Mandie Heath) and Dustin Brown
Good luck on the trip to the UK tomorrow! Shannon, what a blessing to have Matt with you this time around! :)
Love you guys!