No Doors

Matt and I are doing well...all things considered. We were able to go out on a date last week, while his parents were visiting. We went to one of Gordon Ramsey's restaurants called, The Warrington. It was a fantastic pub and we had an amazing meal!! It was so nice to be alone together and just be in love with one another....forgetting for a few moments about the future. We are trying to be very intentional with our marriage, knowing that the stress we are under can be fatal to a relationship. We will not allow that to happen. As Matt so beautifully said to me one night, "Sanfilippo is already taking both of my kids away from me. I will not allow it to take you, too."

We have decided that we are definitely leaving London. We need to settle down and make a home for our family. We will be back in the US at the end of July or beginning of August. We will most likely settle in the DC area, since Matt has a job lined up there already. (If only the cost of living wasn't so ridiculously high!! It scares us.) I feel like I have so much to do to once we arrive home...doctor appointments, figuring out a therapy and school plan, buying a house, buying a car, etc. I get panicked just thinking about it.

These past few days have been really difficult. I think the relief of finally making a decision has worn off and the reality that we closed the door to our only option is setting in. I do not regret the decision we made. I only wish that there was something we could do - something other than sitting back and waiting for this awful disease to take our kids away from us. I am getting tired and am emotionally exhausted.