Time

It has been such a difficult week for me.  I knew that settling into life here in Virginia would bring up a lot of emotions.  I think entering into November is also going to be tough.  This will be our first holiday/birthday season since the kids were diagnosed.  Waverly will turn 5 in a few weeks, Matt and I each celebrate birthdays, Thanksgiving, Christmas and then Oliver will be 2.  Marking the end of a year is scary now.  It means time is flying by and the time I have with Waverly & Oliver is slipping away.

Comments

Anonymous said…
Shannon - I haven't written in forever, but we pray for you and your family every night. Our team is lifting you up in prayer, and we know that family members are praying too. I'm praying that God will sustain you and your family...I pray that you feel His strength and He equips you in such real and tangible ways to be able to handle this. My heart breaks for you and Matt...we will continue to pray every night. Please let us know how more we can pray...

Brittany
Anonymous said…
I am not trying to be insensitive or belittle your situation...I can't imagine what your life is like, how you cope, how you wake up every morning, how you can look into your children's eyes every day knowing what lies ahead...but...try your hardest to enjoy "today" - the way they look at you, the warmth of their body when they snuggle up next to you, holding their hand, ect...

I say that because, I don't want you to ruin the present because of what the future holds. If/when you have to let them go, I want you to feel like you loved and cherished every minute of the time that you had with them. It just seems like the grim reality of the future is robbing you of the precious moments of the present.

I don't know you personally....I just am a friend of a friend who prays for you and reads your blog...so, I could be totally wrong...if so, just disregard this comment.
Shannon said…
I appreciate the comment about enjoying the time I have with the kids. That is my philosophy, but that doesn't mean I can't take time to grieve and mourn the loss of hopes and dream for all of us. I think being honest about the sadness, the pain, the depression is good for me and for those who read this blog. Each day is different...each moment bring different emotions. I just try to be honest in the midst of them.
Anonymous said…
Each time I visit your blog I am drawn to the picture of Oliver with the sun flower.

I really want to pull up his shirt and blow razzberries on his tummy.

Do that for me today, will you, please?
Half Thoughts said…
Shannon,

I was invited to join the Hundred for a Home cause through facebook by Ann Snow - she was my hall director at TU. Although I don't know you and I'm not sure that we'll ever meet, your story captivated my day. I spent a good portion of yesterday reading your blog. I just wanted to let you know that I've been praying for your family and your beautiful kids. I'm praying that you'll be able to buy a home, for a miracle for your kids, and for peace.

Callie
Anonymous said…
I just want to give you a big hug Shannon. Thanks for your honesty & your vulnerability. we are praying for you!

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