Spring Break

It has been an emotional day for me.  I belong to an online forum for MPS families and they offer a lot of experience and support.  I found out that another little boy lost his battle with MPS and a little girl in the UK who has Sanfilippo has been moved to hospice.  Every time I hear about another family losing their child to this terrible disease, it shakes me to my core.

Waverly is on spring break this week.  This means 24 hour mommy duty and it can be quite exhausting.  School provides me with a few hours everyday to focus on Oliver - whether it be his therapy sessions or just playing together.  It also (thank to Oliver's naps) allows me to tend to the apartment, insurance issues, phone calls and a good book.  Needless to say, it has been a long week and we still have 2 days to go.  I am hoping for some sunny weather so we can head outside and take a nice long walk.


Traci said…
I'm sorry that it has been a hard day for you. I thought of you and our time at Taylor as I read your story in the alumni magazine. I thought it was a nice story, and I appreciated your honesty! One day at a time, one prayer at a time.
MB said…

I,too, just read your story in Taylor magazine. I haven't stopped thinking of you since! My daughter is five...I'm tremendously thankful for her good health. I will follow your story - thanks for sharing your courage.
Laura said…
I wish I could send you the beautiful weather we are having today. It's absolutely perfect. I hope you make it through the rest of the week! Give me a call sometime.
Laura said…
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Been following your blog for a while now and I was THRILLED for the article in my Taylor magazine that arrived today. I haven't read it yet, but just wanted to tell you that I'm so glad your story is being told.

Hang in there this week. I'll say an extra prayer for you.

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