It has been an emotional day for me. I belong to an online forum for MPS families and they offer a lot of experience and support. I found out that another little boy lost his battle with MPS and a little girl in the UK who has Sanfilippo has been moved to hospice. Every time I hear about another family losing their child to this terrible disease, it shakes me to my core.
Waverly is on spring break this week. This means 24 hour mommy duty and it can be quite exhausting. School provides me with a few hours everyday to focus on Oliver - whether it be his therapy sessions or just playing together. It also (thank to Oliver's naps) allows me to tend to the apartment, insurance issues, phone calls and a good book. Needless to say, it has been a long week and we still have 2 days to go. I am hoping for some sunny weather so we can head outside and take a nice long walk.