Photos From Our Weekend

Photos From Our Weekend

The only photo I could get of the kids together

I love capturing Waverly running

Oliver is clapping a job well done

Waverly happily running

Waverly running with a smile

Oliver's close up

Oliver waving hello to the camera

Oliver eating marshmallows

Waverly eating an ice cream cone

Oliver enjoying his ice cream

The boy loves to eat

Comments

Erin Kathleen said…

I love the photo of Ollie eating marshmallows - that's about how I look when I'm shoveling delightful blobs of sugar into my mouth too! :) Such great pictures of your kiddos - thanks for sharing. I love getting the chance to see the world through your, and their, eyes.

June 28, 2009 at 10:21 PM

Christine said…

Beautiful kids!

June 28, 2009 at 10:57 PM

Anonymous said…

I recently started reading your blog (learned about it from Kelly's Korner). I have to say that I loved seeing this post today of just pics b/c you all just look like an everyday ordinary family enjoying the little things in life. There's no indication of the battle you face everyday. I have thought about your family so much since learning your story and my heart aches for you. Please find comfort in knowing there are lots of people praying for your family.

On a side note, I saw your post about Clemyjontri and we go to that park too! The kids LOVE it! I am also going to tell my sister about that shoe store in Maryland b/c my nephew has Angelman Syndrome and wears orthodics.

June 29, 2009 at 7:06 AM

Anonymous said…

What wonderful, priceless photos you took this weekend! You are doing everything you can do and more:)

June 29, 2009 at 12:00 PM

Jenkins said…

Love the photos.
They are so precious. I just want to squeeze them!

June 29, 2009 at 4:21 PM

Laura said…

Love the pictures! Please email me your ebay name so that I can buy some of your used Hannas. Wavey's clothes are so beautiful!!

June 29, 2009 at 7:44 PM

Welcome to Holland

By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.""Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay.The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.