Tune in to "Undercover Boss" tonight on CBS. My step-dad, Al, will be one of the employees. He talks about Waverly & Oliver and Sanfilippo Syndrome. He is raising awareness on a national level!!
I have been following your blog for years but I hadn't checked it a while but as I was watching Undercover boss and your father-in-law started talking, I saw the faces of your two amazing kids. I immediately called my mom who has also followed your journey. I guess I felt led to say, you are in our prayers and I know cure is in the works by your faith and your works & diligence. God Bless.
Anonymous said…
Just saw it - wonderful to see such love!
Lisa Bernais said…
Watching right now...awesome awareness for MPS. Have a wonderfull trip to Disney.
Natsmom from the MPSFORUM Stanstead Quebec Canada (Lisa)
Anonymous said…
u don't know me but I have been following your blog for some time. How awesome was the show and the generous donations that were made.
What a wonderful tribute to Waverly and Oliver! Such awareness has been brought to Sanfillipo in just the last month with the pepsi refresh project and now Undeercover Boss. Al seems like a wonderful man, and his love for the kids is so evident! I shed extra tears for your family tonight, and more importantly, continued prayers.
Anonymous said…
A++++++
Angi Sasse (Bogert) said…
Hi Shannon, you probably don't remember me, but I graduated from Emmaus in 92. Kristen Lentz told me about the Pepsi vote, and I voted for your lovely children. Then, my husband and I were watching the show tonight, and I couldn't believe it when your stepdad was on. What a wonderful opportunity for your family! I just wanted to stop by and let you know that we are thinking of your family tonight.
Hello, you don't know me but I am a teacher and a mother of 3 young children living in Minnesota. Sitting here after the show I couldn't stop thinking of the emotions your step dad showed and the beautiful picture of your two children. I unfortunately have never heard of the disease that has affected your life so greatly. I read your blog and loved the story of the little boy who is such a good friend to your daughter. As a physical education teacher who has students from the time they are in 1st grade through 5th grade my greatest joy is watching students have incredible bonds with our many students with special needs. Like you mentioned in one of your posts, I can't even fathom the thought process of knowing that the passing of my child is near like your poor friend is going through right now. Even though they are sleeping I just went to each of my children's rooms just to look at them sleep and touch their faces with tears running down my cheeks. I would really like to join you on this journey both prayerfully and although it will be little financially as well. I pray that God will bless your family and bring you daily peace.
Katie said…
LOVED the show! So glad for the donation to the MPS society and for your whole family to take a vacation. Your stepdad seems like he loves Waverly and Oliver more than anything! God bless your beautiful family.
Saw it! He did a wonderful job and he is oozing love for Waverly and Oliver. So precious!
Anonymous said…
Beautiful, shed tears for him and for you and your husband..
Joanne Huff said…
Hi Shannon,
We disconnected our television last year and so weren't able to watch this show. Do you have a link I could check out with the episode? I'm so sorry we weren't able to see this!
Comments
Natsmom from the MPSFORUM Stanstead Quebec Canada (Lisa)
Katie in Colorado
We disconnected our television last year and so weren't able to watch this show. Do you have a link I could check out with the episode? I'm so sorry we weren't able to see this!
Joanne