Sedation

Tomorrow afternoon Waverly is going to the hospital for a sedated ABR and EEG.  Due to her recent seizure activity, the neurologist wants to have a look at her brain's electrical activity.  Even though the chance of her having a seizure during the test is very slim, they may be able to see other abnormalities to help determine our next step.  We were fortunate that the hospital was able to arrange for her to have her hearing test done at the same time, to limit sedation.  The last 2 times Waverly had anesthesia, she had an incredibly difficult time going under.  She fought sleep with all she had and it took over 3 hours for her to succumb to the medicine.  And then it took us a few hours to wake her up.  I know that I have mentioned before the risks of sedating children with MPS.  The hospital has been wonderful and they arranged to have 2 anesthesiologists present for her tests, to be sure everything goes well.  Needless to say, I am quite nervous and will most likely have a difficult time sleeping tonight.